Take-aways from DCDD’s Learning Session
On 21st of June Dutch Coalition on Disability and Development organized a knowledge session together with the Leprosy Mission with the theme of “Effective Lobby for Inclusion of People with Disabilities.†We had the honour to receive a guest speaker from India: Pradeep Bagival, who has worked for several UN agencies and USAID as a disability advisor, as well as served as the Assistant Commissioner for Disabilities for the Government of India. Currently, Pradeep works as a Head of Advocacy in Leprosy Mission, combining his passion for advocacy and commitment to disability rights together with helping to ensure that the rights of people affected by leprosy feature high on the agenda of INGOs, national governments and the UN.
In haar gastvrije inleiding heeft Lieke Scheewe, de coördinator & beleidsadviseur van DCDD, gewezen op het belang van het erkennen van de grote diversiteit die bestaat binnen de gehandicaptenbeweging. Terwijl personen met een handicap allemaal geconfronteerd worden met vergelijkbare negatieve veronderstellingen over hun mogelijkheden, worden verschillende groepen (bijv. Mensen met albinisme, autisme, visuele beperkingen, lichamelijke of intellectuele handicaps of melaatsheid) ook geconfronteerd met zeer verschillende soorten barrières en uitdagingen. We moeten niet alleen rekening houden met deze verschillen in onze belangenbehartiging, maar ook bewust blijven van hoe we op deze diversiteit kunnen voortbouwen als kracht van solidariteit.
Op mensenrechten gebaseerde aanpak
Pradeep benadrukte de op mensenrechten gebaseerde aanpak bij het aanpakken van discriminatie van personen met een handicap. Pradeep bekijkt de op mensenrechten gebaseerde aanpak via drie pijlers: participatie, non-discriminatie en verantwoordingsplicht. De politieke vertegenwoordiging van personen die zelf een handicap hebben, is bijvoorbeeld een uitstekende vorm van deelname. met betrekking tot non-discriminatie, Pradeep verklaarde dat in het algemeen het stigma en de discriminatie van handicaps is afgenomen, maar minderheidsgroepen binnen mensen met een handicap worden nog steeds geconfronteerd met een enorm stigma.
As one of these minority groups, Pradeep mentioned persons with leprosy. He gave an example from India, where there used to be 119 discriminatory laws against persons with leprosy-related disabilities – they were, for example, denied access to education and politics as well as rights to own property. Fortunately, because of successful advocacy, change is slowly taking place: in 2014, the Indian Ministry of Law and Justice proposed to repeal those laws discriminating persons with leprosy, and in 2019, the Indian parliament passed a bill to remove leprosy as a ground for divorce from 5 personal laws of India. However, a lot remains to be done in working towards ‘non-discrimination’ in practice. Lastly, speaking of verantwoording, Pradeep moedigde de regeringen aan om verantwoording af te leggen, wanneer zij zich niet aan de afspraken houden, met name door gebruik te maken van de mensenrechtenmechanismen van de VN.
Beginselen en richtlijnen om discriminatie uit te bannen tegen door Lepra getroffen personen en hun familieleden
‘Principles and Guidelines to Eliminate Discrimination against Persons affected by Leprosy and their family members’ is an initiative of the Human Rights sub-commission from 2004, adopted by the UN General Assembly in 2010 and endorsed by the Human Rights Council. The Principles and Guidelines are legally binding in all 22 leprosy priority countries (i.e. where leprosy is most prevalent) as well as obligatory to implement for countries that have ratified human rights treaties. Pradeep emphasized the importance of the Principles and Guidelines, because the stigma and discrimination does not only affect the persons with leprosy but their family members too. Families affected by leprosy tend to lose their social capital, which is otherwise a crucial safety net, especially in village communities. Families get isolated when neighbours, religious groups and other social structures abandon them due to fear of contracting the disease. Pradeep raised a concern that despite the binding and obligatory nature of the Principles and Guidelines, a review conducted in 2016 revealed that discrimination still continues.
Goed bestuur
Finally, Another important topic of Pradeep’s speech emphasized the crucial importance of good governance – he underlined, that without good governance, we are not going to reach inclusion, neither the Sustainable Development Goals. When asked what to do in the situation where there is a lack of good governance, Pradeep’s answer was clear “Advocate! Civil society has an important role in improving and promoting good governance -– use the media, the UN system, and specific research studies to provide evidence – tell them why exactly good governance is needed.â€
